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The Patient-First Platform Revolutionizing ALS Care
How a 18-person nonprofit built a $2.5M engine for patient-centric research
In a healthcare landscape dominated by institutional inertia, EverythingALS.org is quietly building the digital backbone for a new era of patient-driven research. This isn't just another health site—it's a $2.5M nonprofit with the agility to outmaneuver legacy systems, creating a direct line between patients, caregivers, and the scientists racing against time.
"They're not waiting for permission to disrupt the ALS research model—they're building the platform patients have been begging for."
The Patient-First Architecture
EverythingALS operates on a radical premise: patients should be collaborators, not just subjects. Their platform creates direct engagement channels between the 3,740 monthly visitors (a highly motivated, niche audience) and researchers. With 920 monthly searches for 'James Berry, MD, MPH'—a key specialist—showing they're capturing the right traffic from people seeking expertise, not just general information. This isn't passive content consumption; it's an active research network.
The SEO Playbook They're Using
Their keyword strategy reveals sophisticated intent targeting. They rank for 'stages of ALS' (510 searches), 'ALS data' (460 searches), and even niche terms like 'Karl Macfinn' (460 searches). This isn't accidental—it's a deliberate capture of high-intent, research-oriented traffic. The 90.8% 'undefined' country traffic suggests a US-heavy audience, but their global infrastructure (via platforms like Zendesk and multi-lingual support) is built to scale.
The technology stack tells its own story. They're using Vite and Webpack for fast iteration, Tailwind CSS for rapid UI development, and Google Analytics for data-driven decisions. This is a lean, modern stack that allows an 18-person team to move like a startup, not a traditional nonprofit. The presence of RSS feeds and Twitter Cards shows they understand distribution, while Priority Hints and Lazy Loading demonstrate technical sophistication in user experience.
- Direct patient-to-researcher engagement model (bypassing traditional gatekeepers)
- Data-driven content strategy capturing high-intent medical research traffic
- Modern tech stack enabling rapid iteration on a lean budget
- Multi-platform social presence (Twitter, LinkedIn, YouTube, Instagram) for community building
- Revenue transparency ($2.5M) that builds trust in an industry rife with opacity
The Unfair Advantage: Trust Through Transparency
In a field where trust is everything, EverythingALS has built a $2.5M engine that patients, researchers, and even competitors can't ignore.
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EverythingALS.org
EverythingALS is a patient-focused non-profit, part of Peter Cohen Foundation (PCF) a 501(3)c organization. Our mission is to support efforts to care for ALS patients and work to find a cure by creating a platform for direct engagement with patients, caregivers, advocates, and researchers.
EverythingALS.org
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About everythingals.org
EverythingALS is a patient-focused non-profit, part of Peter Cohen Foundation (PCF) a 501(3)c organization. Our mission is to support efforts to care for ALS patients and work to find a cure by creating a platform for direct engagement with patients, caregivers, advocates, and researchers.
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Technology Stack
everythingals.org uses 18 technologies across their website including Font Awesome, HSTS, Sentry, and more.
Fonts
Font Awesome
Security
HSTS
Error Tracking
Sentry
Programming Languages
PHP
CMS
Wix
Customer Support
Zendesk
Traffic & Audience
everythingals.org receives approximately 3.7K monthly visitors and ranks #4,477,863 globally. The website has a bounce rate of 45% with visitors viewing an average of 1.9 pages per visit. Users spend an average of 2:04 on the site.
The majority of everythingals.org's traffic comes from undefined, .
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